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1 Clinical profile and quality of life of Puerto Ricans with ...
https://pubmed.ncbi.nlm.nih.gov/30819279/
Background: There is limited data on clinical characteristics and quality of life (QoL) of Hereditary angioedema (HAE) patients in Puerto Rico.
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2 Puerto Rico - HAE International (HAEi)
https://haei.org/hae-member-countries/puerto-rico/
HAE International (HAEi) is a global non-profit network of patient associations dedicated to raising awareness of hereditary angioedema (HAE) ...
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3 P096 Hereditary angioedema in the puerto rican population
https://www.annallergy.org/article/S1081-1206(16)30732-3/fulltext
Hereditary angioedema (HAE) is a life-threatening condition characterized by episodes of subcutaneous or submucosal edema. Despite numerous HAE studies ...
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4 Burden Of Hereditary Angioedema In The Quality Of Life ...
https://www.jacionline.org/article/S0091-6749(17)32078-X/fulltext
Hereditary angioedema (HAE) is a life-threatening condition characterized by recurrent episodes of subcutaneous or submucosal edema commonly ...
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5 Puerto Rico EN - hae day :-)
https://haeday.org/region-8-central-america-caribbean-mexico-and-north-america/puerto-rico-en/
HAEA / HAEi Health Economics Study. · Hereditary Angioedema Primer. · US HAEA Medical Advisory Board 2020 Guidelines for the Management of Hereditary Angioedema.
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6 P096 Hereditary angioedema in the puerto rican population
https://www.sciencedirect.com/science/article/abs/pii/S1081120616307323#!
Hereditary angioedema (HAE) is a life-threatening condition characterized by episodes of subcutaneous or submucosal edema. Despite numerous HAE studies ...
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7 An Updated Experience with Patients with Angioedema ... - Gale
https://link.gale.com/apps/doc/A611171932/AONE?u=googlescholar&sid=AONE&xid=4a3fe7ce
Over the past 5 years, there has been an increasing number of identified cases of HAE and acquired angioedema (AAE) in Puerto Rico (PR).
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8 Understanding Hereditary Angioedema | AAAAI
https://www.aaaai.org/tools-for-the-public/conditions-library/allergies/understanding-hereditary-angioedema
AAAAI experts in allergy, asthma and immunology explain Hereditary Angioedema is a potentially life-threatening disorder caused by a genetic defect.
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9 Effectiveness and safety of lanadelumab in ethnic and racial ...
https://aacijournal.biomedcentral.com/articles/10.1186/s13223-022-00721-y
Hereditary angioedema (HAE) is a rare autosomal dominant disorder ... quality of life for Hispanic patients with HAE in Puerto Rico, ...
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10 Hereditary and Acquired Angioedema: Experience with Patients in ...
https://www.researchgate.net/publication/8580785_Hereditary_and_Acquired_Angioedema_Experience_with_Patients_in_Puerto_Rico
Download Citation | Hereditary and Acquired Angioedema: Experience with Patients in Puerto Rico | Hereditary (HAE) and acquired (AAE) angioedema are ...
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11 (PDF) Hereditary and acquired angioedema: experience with ...
https://www.academia.edu/32861410/Hereditary_and_acquired_angioedema_experience_with_patients_in_Puerto_Rico
Hereditary and acquired angioedema: experience with patients in Puerto Rico ... Hereditary (HAE) and acquired (AAE) angioedema are vascular reactions involving ...
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12 PRIME PubMed | Hereditary and acquired angioedema: experience ...
https://www.unboundmedicine.com/medline/citation/15125214/Hereditary_and_acquired_angioedema:_experience_with_patients_in_Puerto_Rico_
PubMed journal article: Hereditary and acquired angioedema: experience with patients in Puerto Rico. Download Prime PubMed App to iPhone, iPad, or Android.
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13 A catalog of the genetic causes of hereditary angioedema in ...
https://www.frontiersin.org/articles/10.3389/fimmu.2022.997148/full
Hereditary angioedema (HAE) is a rare disease where known causes involve ... Romania (72), Austria (73), and Puerto Rico (74), among others.
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14 [PDF] Hereditary angioedema. | Semantic Scholar
https://www.semanticscholar.org/paper/Hereditary-angioedema.-Cicardi-Agostoni/0067b27f9e2663e4b0d43c6efe2270da5230e8c9
Hereditary angioedema is a disorder characterized by recurrent episodes of ... Hereditary and acquired angioedema: experience with patients in Puerto Rico.
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15 Tense Bullae as a Rare Skin Manifestation of Hereditary ...
https://www.jaci-inpractice.org/article/S2213-2198(20)30691-7/pdf
diagnosed with hereditary angioedema (HAE) type I at adoles- ... Allergy-Immunology Section, University of Puerto Rico School of Medicine, ...
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16 25 of the Best Immunologist or Allergists in Puerto Rico, US
https://www.medifind.com/specialty/allergy-and-immunology/US/PR
Benitez-Ortiz has been practicing medicine for over 18 years and. Her top areas of expertise are Hereditary Angioedema, Angioedema, and Hives. She is licensed ...
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17 Mitigating Disparity in Health-care Resources Between ...
https://link.springer.com/article/10.1007/s12016-021-08854-5
Hereditary angioedema (HAE) is a rare genetic disorder characterized ... and acquired angioedema: experience with patients in Puerto Rico.
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18 Study shows advances in treatments for patients with ...
https://www.sundayvision.co.ug/study-shows-advances-in-treatments-for-patients-with-angioedema-in-puerto-rico/
Patients with hereditary angioedema (HAE) type 1 and type 2 showed better ... to date, the Puerto Rican government has not included HAE in the list of ...
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19 US Hereditary Angioedema Association - Angioedema Center
https://angioedemacenter.com/page/press
Study shows advances in treatments for patients with angioedema in Puerto Rico January 20th, 2022. Care May Prevent Airway Swelling in HAE Patients During ...
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20 Long-term Safety and Efficacy Study of DX-2930 (SHP643) to ...
https://clinicaltrials.gov/ct2/show/NCT02741596
Rate of Investigator Confirmed Hereditary Angioedema (HAE) Attacks During the Treatment Period [ Time Frame: Up to Day 924 ]. HAE attack was defined as a ...
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21 First Census of Patients with Hereditary Angioedema in the ...
https://www.mdpi.com/2077-0383/10/20/4711/htm
Hereditary angioedema (HAE) is a rare genetic condition whose main symptoms are ... Croatia [34], China [35], Romania [36], Austria [37], Puerto Rico [38], ...
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22 Hereditary Angioedema - Rare Disease Advisor
https://www.rarediseaseadvisor.com/junction-hub-pages/hereditary-angioedema/
Access news, insights, perspectives, and resources on the diagnosis and treatment of hereditary angioedema (HAE) at Rare Disease Advisor.
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23 HEREDITARY ANGIOEDEMA ASSOCIATION INC. :: Puerto Rico
https://opencorporates.com/companies/pr/461217-122
Free and open company data on Puerto Rico company HEREDITARY ANGIOEDEMA ASSOCIATION INC. (company number 461217-122), 90 Candelero Drive Apt ...
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24 Michelle Cuevas - Senior Executive VP & COO - HAEA
https://www.linkedin.com/in/michellecuevas
Hereditary Angioedema Association - HAEAWebster University ... personal responsibility, and entrepreneurism in Puerto Rico and U.S. Latino communities.
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25 experience with patients in Puerto Rico | Maria L Santaella
https://www.senin.live/help-https-www.academia.edu/32861410/Hereditary_and_acquired_angioedema_experience_with_patients_in_Puerto_Rico
Hereditary (HAE) and acquired (AAE) angioedema are vascular reactions involving the sub mucosal tissues, representing localized edema caused by dilatation ...
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26 Decreasing Attacks and Improving Quality of Life through a ...
https://www.karger.com/Article/Abstract/513896
Clinical profile and quality of life of Puerto Ricans with hereditary angioedema. Allergy Asthma Proc . 2019;40(2):103–10. External Resources.
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27 Long-term prevention of hereditary angioedema attacks with ...
https://profiles.wustl.edu/en/publications/long-term-prevention-of-hereditary-angioedema-attacks-with-lanade
Lanadelumab markedly reduced mean HAE attack rate (reduction vs baseline: ... Italy: M. Cicardi*; Jordan: M. Shennak; Puerto Rico: R.H. Zaragoza-Urdaz; ...
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28 Pathophysiology of Hereditary Angioedema - Bruce L. Zuraw ...
https://journals.sagepub.com/doi/abs/10.2500/ajra.2011.25.3661
Hereditary Angioedema: Management of Laryngeal Attacks ... Abstracts from the North American Rhinology & Allergy Conference, February 3, 2012, Puerto Rico.
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29 Longā€term prevention of hereditary angioedema attacks with ...
https://onlinelibrary.wiley.com/doi/10.1111/all.15011
Lanadelumab markedly reduced mean HAE attack rate (reduction vs ... P. Staubach; Italy: M. Cicardi*; Jordan: M. Shennak; Puerto Rico: R.H. ...
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30 Hereditary Angioedema An Updated Experience With Patients ...
https://www.scribd.com/document/529363851/Hereditary-Angioedema-An-Updated-Experience-with-Patients-with-Angioedema-in-Puerto-Rico
in Puerto Rico Angélica M. Rosado-Quiñones, BA; Rafael Zaragoza-Urdaz, MD, PhD. Objective: This was a study of patients with hereditary angioedema (HAE) and
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31 Kalbitor available for hereditary angioedema (HAE) - MPR
https://www.empr.com/home/news/kalbitor-available-for-hereditary-angioedema-hae/
Dyax Corporation announced the availability of Kalbitor (ecallantide for injection) for the treatment of acute attacks of hereditary ...
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32 The impact of hereditary angioedema (HAE) - apiePAE
https://www.apiepae.lt/en/hcp/impact-of-hae/burden-of-hae/
hereditary angioedema limits the way patients live their lives · Interrupted social life · Disrupted educational aspirations · Anxiety of future attacks · Fear of ...
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33 Hereditary Angioedema (HAE) - Cancer Therapy Advisor
https://www.cancertherapyadvisor.com/home/decision-support-in-medicine/pediatrics/hereditary-angioedema-hae/
Hereditary angioedema (HAE) is a disorder characterized by recurrent episodes of nonpruritic and nonpitting edema primarily of the peripheral extremities ...
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34 knowHAE | Talking to patients with hereditary angioedema (HAE)
https://www.vseohae.si/en/hcp/impact-of-hae/talking-to-patients/
Assess the full impact hereditary angioedema (HAE) has on your patients, including how it affects them socially, emotionally, and professionally.
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35 Treatment of Hereditary Angioedema (HAE) - Healthcare Field ...
https://healthcare.fieldscopeint.com/treatment-of-hereditary-angioedema-hae/
We are looking for Immunologists and KOLs to take part in our latest study on Hereditary Angioedema. To take part in the 90 web-assisted telephone interview ...
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36 knowHAE | Treating hereditary angioedema (HAE)
https://www.hae.lv/en/hcp/identifying-hae/treating-hae/
Get to know types of treatment for hereditary angioedema (HAE), a rare genetic disease that causes sudden attacks of swelling in various parts of the body.
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37 BioCryst Says ORLADEYO Approved By Israeli Ministry Of ...
https://www.nasdaq.com/articles/biocryst-says-orladeyo-approved-by-israeli-ministry-of-health-to-prevent-hereditary
ORLADEYO (berotralstat) is the first and only oral therapy designed specifically to prevent attacks of hereditary angioedema (HAE) in adult ...
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38 Study Shows Advances in Treatments for Patients ... - 17Blogs -
https://17blogs.com/study-shows-advances-in-treatments-for-patients-with-angioedema-in-puerto-rico/
Hereditary Angioedema (HAE) Type I and Type II patients have ... president of the Puerto Rican Association of Allergy Physicians, ...
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39 Hereditary Angioedema Association - HAEA - Facebook
https://www.facebook.com/hereditaryangioedema/events/
To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ...
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40 BioCryst Announces Approval of ORLADEYO® (berotralstat ...
https://www.elpasoinc.com/biocryst-announces-approval-of-orladeyo-berotralstat-by-the-israeli-ministry-of-health/article_e77f5529-132b-5a77-a7d9-1b25297cb585.html
ORLADEYO® (berotralstat) is the first and only oral therapy designed specifically to prevent attacks of hereditary angioedema (HAE) in adult and ...
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41 New US report highlights higher death risk from multiple ...
https://www.einnews.com/pr_news/603049874/new-us-report-highlights-higher-death-risk-from-multiple-covid-infections
... seven drug programs in the areas of anticoagulation, diabetic retinopathy, hereditary angioedema, oncology, and metabolic disorders.
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42 Hereditary Angioedema (HAE) - UC San Diego Health
https://health.ucsd.edu/specialties/allergy/angioedema/pages/hereditary-angioedema.aspx
The Hereditary Angioedema Center at UC San Diego Health is dedicated to diagnosing and treating patients with diverse forms of swelling attacks caused by ...
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43 Hereditary angioedema: MedlinePlus Medical Encyclopedia
https://medlineplus.gov/ency/article/001456.htm
Hereditary angioedema is a rare but serious problem with the immune system. The problem is passed down through families.
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44 Hereditary Angioedema - CSL Behring
https://www.cslbehring.com/patients/find-your-disease/hereditary-angioedema
CSL Behring has therapies for treating hereditary angioedema (HAE), a rare disease that can cause swelling in specific parts of the body. Learn more.
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45 What is hereditary angioedema (HAE)? - AllAboutHAE
https://www.allabouthae.com/what-is-hae
HAE is a rare hereditary disease that can cause attacks of swelling, and often pain, in specific parts of the body including the stomach, hands, feet, arms, ...
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46 Diagnosing Hereditary Angioedema (HAE) - Discover HAE
https://www.discoverhae.com/hereditary-angioedema-diagnosis
Because hereditary angioedema (HAE) is a rare condition, few people have heard of it, including doctors. Because HAE shares many symptoms in common with ...
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